Any diabetic burners out there?

Questions, answers, tips & tricks for newbies and veterans alike
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Gee-Banger
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Re: Any diabetic burners out there?

Post by Gee-Banger » Tue Jul 29, 2014 7:03 am

Haha! You gave me me a hypo laughing! ;)

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GreyCoyote
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Re: Any diabetic burners out there?

Post by GreyCoyote » Sun Jun 07, 2015 8:10 pm

Another year has passed, and this means another edition of the Unofficial Diabetes Supplement to the Burningman Survival Guide is ready.

If you are a diabetic burner, PM me your email address and I'll send you the latest edition hot off the presses. It's 26 pages and 13,500+ words in PDF format. (Guaranteed to cure insomnia! LOL!) :mrgreen:
"To sum up my compassion level, I think we should feed the unwanted animals to the homeless. Or visa versa. Too much attention and money is spent on both."
(A Beautiful Mind)

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Jovankat
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Re: Any diabetic burners out there?

Post by Jovankat » Sun Jun 07, 2015 8:50 pm

GreyCoyote wrote:Another year has passed, and this means another edition of the Unofficial Diabetes Supplement to the Burningman Survival Guide is ready.

If you are a diabetic burner, PM me your email address and I'll send you the latest edition hot off the presses. It's 26 pages and 13,500+ words in PDF format. (Guaranteed to cure insomnia! LOL!) :mrgreen:

I read this to Chris and his response was "Of course he did!"

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GreyCoyote
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Re: Any diabetic burners out there?

Post by GreyCoyote » Mon Jun 08, 2015 8:02 pm

Jovankat wrote:
GreyCoyote wrote:Another year has passed, and this means another edition of the Unofficial Diabetes Supplement to the Burningman Survival Guide is ready.

If you are a diabetic burner, PM me your email address and I'll send you the latest edition hot off the presses. It's 26 pages and 13,500+ words in PDF format. (Guaranteed to cure insomnia! LOL!) :mrgreen:

I read this to Chris and his response was "Of course he did!"
I know... I'm getting predictable in my Olde Age... :mrgreen:
"To sum up my compassion level, I think we should feed the unwanted animals to the homeless. Or visa versa. Too much attention and money is spent on both."
(A Beautiful Mind)

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Jovankat
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Re: Any diabetic burners out there?

Post by Jovankat » Tue Jun 09, 2015 12:40 pm

I think it's ok when you're predictably awesome :P

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DanusLight
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Re: Any diabetic burners out there?

Post by DanusLight » Mon Jul 20, 2015 11:17 am

T2 here. This is my first burn, but this was great information. Thank You.

I'm maxed on oral meds and use Lantus at night. So, I now have an email into my doc to ask about changing the Lantus dose if need be.

Thank You Again for all this info!



GreyCoyote wrote:Another year has passed, and this means another edition of the Unofficial Diabetes Supplement to the Burningman Survival Guide is ready.

If you are a diabetic burner, PM me your email address and I'll send you the latest edition hot off the presses. It's 26 pages and 13,500+ words in PDF format. (Guaranteed to cure insomnia! LOL!) :mrgreen:
I don't sit up all night and plot revenge... I just sit back and giggle once Karma takes over!!!

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GreyCoyote
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Re: Any diabetic burners out there?

Post by GreyCoyote » Mon Jul 20, 2015 11:25 am

DanusLight wrote:T2 here. This is my first burn, but this was great information. Thank You.

I'm maxed on oral meds and use Lantus at night. So, I now have an email into my doc to ask about changing the Lantus dose if need be.

Thank You Again for all this info!
Glad to help!

PM me your email address and I'll send you the latest edition hot off the presses. It's been massively revamped and is now 26 pages and 13,500+ words in PDF format. Its really aimed at T1's, but much of it translates to insulin-dependent T2's too.
"To sum up my compassion level, I think we should feed the unwanted animals to the homeless. Or visa versa. Too much attention and money is spent on both."
(A Beautiful Mind)

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GreyCoyote
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Re: Any diabetic burners out there?

Post by GreyCoyote » Fri Jul 31, 2015 4:02 pm

I'm bumping this thread in the hope to catch any new arrivals.

If you are a Type 1, or are part of the tribe camping with a Type 1, PM me your email addy and I will happily shoot you a copy.
"To sum up my compassion level, I think we should feed the unwanted animals to the homeless. Or visa versa. Too much attention and money is spent on both."
(A Beautiful Mind)

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GreyCoyote
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Re: Any diabetic burners out there?

Post by GreyCoyote » Wed Jul 19, 2017 3:55 pm

Once again, we bump this thread and I shall begin my shameless trolling for all you Type 1's out there. (You know who you are are. You are the awesome guys and dolls who have tossed-out their pancretic islet cells, stared Death in the face, and said "Fuck you! I'll control my own insulin delivery, thank you oh so very fucking much!!!!)". You are the few. The proud. The stuff of legend. Those worthy of respect. YOU ARE MY CLAN!!!

On a deadly serious note, if you are a Type 1, and you are about to land on the playa, and you want to burn with a (safe) and awesome intensity, please hit me up. There is an art and science to this. Let me give you the missing part of the Burningman Survival Guide. Let me give you some tools so you can have a chat with your endo and plot a strategy that will keep you safe, alive, and burning hard! HARD!! Not like some some pussy-whipped Noob, but like the PARTY ANIMAL you are!

FWIW, I wont be in the dust this year, (sigh) but I damn Skippy will help my T1D Peeps attain a legendary level of control in my absence! YOU are my Tribe and this information is your power, so put away the shyness and PM me.

You know who you are. Do it. :)

Grey
"To sum up my compassion level, I think we should feed the unwanted animals to the homeless. Or visa versa. Too much attention and money is spent on both."
(A Beautiful Mind)

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AfricanFire
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Re: Any diabetic burners out there?

Post by AfricanFire » Wed Aug 02, 2017 11:49 pm

Heading back to BRC this year, with a couple of changes since the last time - Still on MDI's but taking Toujeo now for my basal. Also, I'm now using a Dexcom CGM so that adds a layer of complexity to the experience. Looking forward to it.

I'm considering getting some of these instead of an annoying medical alert necklace/bracelet.
https://pumppeelz.com/collections/temporarytattoos

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GreyCoyote
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Re: Any diabetic burners out there?

Post by GreyCoyote » Wed Aug 30, 2017 11:39 am

clem24 wrote:Diabetes sucks. I am still surprised how my cousins blood sugar level rose above 180. It's scary. And the blood sugar level chart is showing he is at the danger zone.
Diabetes is quite the thrill ride.

That being said, 180 mg/dL is really nothing to worry about. This is way, way short of a panic. At 180 he has months before issues will occur. Frankly, MOST Type 1's spike that high, or higher, after a meal.

That being said, 180 isnt ideal. If he is cruising at 180 as a matter of course, then its time for him to review his basics: carbs, correction and continuity. Bolus. Basal. 180 just says "yo! A little attention here!"

Personally, and speaking STRICTLY for myself, I'd just hydrate and see what happens. Dehydration on the playa is some of what drives high BG's. So add water until you piss clear and then some. Retest in 3 hours. You would be shocked what happens when water gets added. Still high? Maybe a smidge more basal or a correction bolus. He'll know which based on his logs.

You: you're a damn good friend to be watching his back. Thank you for that. If he gets over 400 for more thn 30 minutes, or over 300 for more than an hour, snag his ass and haul him off to the med tent for inspection. And any time you see more than 450, for ANY amount of time, he's on the next MV to Rampart, no questions asked.
"To sum up my compassion level, I think we should feed the unwanted animals to the homeless. Or visa versa. Too much attention and money is spent on both."
(A Beautiful Mind)

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AfricanFire
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Re: Any diabetic burners out there?

Post by AfricanFire » Tue Jan 23, 2018 9:30 pm

Belated follow-up.

I absolutely LOVED having the Dexcom on playa. Given that mealtimes can be somewhat inconsistent, being able to keep an eye on things and where I was trending at any given time was just perfect. I didn't run high once, and only dropped low very briefly and was able to correct quickly and easily.

I was on playa for more than 2 weeks, and with all the heat and sweating I did need to change my sensor once while there. That was probably the worst part. I used a friends RV to try and cut down on some of the dust, but it was like 4 million degrees in there. The sweat was pouring off my forehead and into my eyes so much I couldn't see properly. Next time I'll just do it in my shade structure.

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Shoeshine
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Re: Any diabetic burners out there?

Post by Shoeshine » Thu Feb 22, 2018 11:44 pm

Yup, dexcom rocks. Nothing like CGM when shit is out of your normal regimen. But you have to have charging for your phone/monitor. personally good because I have my Aliner with generator and house batteries.

Reach out. no one will deny you charge when you tell em why

on the sensor change front: you can coax up to 12-13ish days out of a sensor. I put a new one on in Fernley regardless of where I am at by insertion date. Throw on a simpatch (https://tinyurl.com/y9ajga5zor) or equivalent to make sure of adhesion.

T1- burning since 2010
"Do not follow where the path may lead. Go instead where there is no path and leave a trail."

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AfricanFire
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Re: Any diabetic burners out there?

Post by AfricanFire » Fri Feb 23, 2018 10:19 am

Yeah, I normally get 2 weeks from a sensor - anything more and my skin starts to freak out and leave welts. I was hoping to make the sensor last the whole time, but with the heat, sweat, and dust it got to the point where it was barely hanging on. No amount of retaping or adhesive helped :)

Fortunately my camp has generators and a charging station. I'd just top up the charge whenever I was there so I never had any problem with that. But good idea on asking for help from other places in an emergency. I have a tendency to not do that.

fancynstuff1
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Re: Any diabetic burners out there?

Post by fancynstuff1 » Wed Apr 11, 2018 6:51 pm

Thank you So Much for having this page of such useful information.

I agreed to go to burning man for the first time this year but i’ve been Very worried that being type onederful could make this a dangerous situation. Happy to hear there’s a bunch of onederfuls who made it there and back again and had fun too.

I still have to read all the tips, but from what i’ve read so far it looks like i need a cooler and a bracelet. I already got a dexcom coming in the mail which i’ve never used before, am wondering if it will make matters easier or harder. (Does all the dust and sunblock make the tape stop working? Will it get in the way of my dancing playing and cuddling) I am also a bit concerned that dust will get on my pen needles (could that cause an infection?)

Then there’s the whole water thing.. I’ve been hospitalized for dehydration before, back when i had an endo who was convinced i was type2 and didn’t have me on enough insulin. So now that im on the right meds it isn’t likely to happen again, but being in a desert does make me concerned. I’m gonna get a camelback and some large canteens to keep on my bike i guess.. gonna go read up some more on yalls suggestions.

This seems so much more doable now, thanks again!

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Shoeshine
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Re: Any diabetic burners out there?

Post by Shoeshine » Wed Apr 11, 2018 7:17 pm

Hey fancy, T1 here and going for my 9th year. Definitely do-able.

that said, the key is to watch yourself. the dexcom really helps. get a sports patch for (link above) it the adhesive it comes with isn't enough IMHO. I'm totally used to mine and don't find it getting in the way of much. its more of a conversation piece that anything (hey guys! I'm wired for bluetooth now!)

Never had an issue with infection. the dust is pretty inert. I just swipe quickly with a disposable prep pad and shoot.
Water is critical for anyone out there, but just make sure to keep a bottle or bag with you and keep sipping all day.

Most important ... let your camp mates know (and know what to watch out for, how you act when low, what to do, etc..)

Cheers
Shoe
"Do not follow where the path may lead. Go instead where there is no path and leave a trail."

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